Victoria A. Miller

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Associate Professor of Pediatrics (Adolescent Medicine) at the Children's Hospital of Philadelphia
Senior Researcher, Department of Medical Ethics, Children's Hospital of Philadelphia, University of Pennsylvania
Director of Research, Craig-Dalsimer Division of Adolescent Medicine, Children’s Hospital of Philadelphia, University of Pennsylvania
Affiliated Faculty, Center for Parent and Teen Communication, Children's Hospital of Philadelphia
Core Faculty Member, Center for Pediatric Clinical Effectiveness, Children's Hospital of Philadelphia, University of Pennsylvania
Department: Pediatrics

Contact information
Children's Hospital of Philadelphia
Division of Adolescent Medicine
HUB, 14-591
34th Street and Civic Center Boulevard
Philadelphia, PA 19104
Office: 267-426-5259
Education:
BA (Psychology and Biomedical Ethics)
Brown University, 1997.
MA (Clinical Psychology, specialization in Pediatrics)
Case Western Reserve University, 2002.
PhD (Clinical Psychology, specialization in Child/Pediatrics)
Case Western Reserve University, 2005.
Post-Graduate Training
Fellow, Leadership Education in Neurodevelopmental Disabilities (LEND), Children’s Hospital of Philadelphia, 2004-2005.
Intern, Psychology, Department of Psychology, Children's Hospital of Philadelphia, 2004-2005.
Postdoctoral Fellow, Center for Research Integrity, Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia, 2005-2007.
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Description of Research Expertise

My overall goal is to conduct developmentally focused research that will inform questions related to child and family decision making about health-related issues.

One area of research has focused on independent self-management of chronic illness, with a particular focus on the development of decision making autonomy and competence. This line of research has underscored that the parent-child relationship is an important context in which decision making independence and competence develop. My current study is an R01-funded longitudinal study to determine the developmental mechanisms, predictors, and outcomes (e.g., treatment adherence and responsibility) of children’s decision making involvement, in children and adolescents with cystic fibrosis or type 1 diabetes.

The second area of research has focused on informed consent and assent in pediatric medical settings. I recently received funding from NIH to examine the potential benefits of children’s involvement in decisions about medical research decisions. I am also a co-investigator on two other studies in this area. One is a prospective cohort study that is following children with life-threatening chronic conditions and their parents, examining the process of decision making and the impact of hopeful patterns of thought, positive and negative affect, and the child’s illness trajectory (PI: Chris Feudtner). The second is a sub-project of a U01 grant (PI: Krantz) to examine informed consent and assent and return of results in the context of genomic sequencing in pediatric settings (PI of sub-project: Bernhardt).

Description of Itmat Expertise

Chronic illness management during childhood and adolescence; decision making, informed consent and assent

Selected Publications

Ulrich, C.M., Ratcliffe, S.J., Hochheimer, C., Zhou, Q., Huang, L., Gordon, T., Richmond, T.S., Schapira, M.M., Miller, V., Mao, J.J., Naylor, M.D., & Grady, C.: Informed consent among clinical trial participants with different cancer diagnoses. AJOB Empirical Bioethics 3(1): 1-13, Nov 2023.

Miller, V.A., Ibarra Toro, A., Friedrich, E.A., Snyder, M., Stevens, E., & Fremont, E.R.: Adolescent, parent, and clinician perspectives on increasing adolescent involvement in decision making during clinic visits. Journal of Pediatric Health Care 37(5): 528-536, Oct 2023.

Miller, V.A., Miller, C., Davis, S.M., Nokoff, N.J., Buchanan, C., Friedrich, E.A., Carl, A., Strine, S., & Vogiatzi, M.: Information needs and health status in adolescents and young adults with differences of sex development or sex chromosome aneuploidies. Journal of Pediatric Urology 19(5): 586-595, Oct 2023.

Grimberg, A., Friedrich, E.A., Faig, W., Kamoun, C., Fremont, E.R., Xiao, R., and Miller, V.A.: Patient and parent characteristics related to quality of life and self-esteem in healthy youth undergoing provocative GH testing. Journal of Pediatrics 260: 113460, Sep 2023.

Fremont, E., Grimberg, A., Friedrich, E. A., & Miller, V. A. : Youth and parent perceptions of youth decision-making roles regarding evaluation for short stature. Children's Health Care 53(2): 148-162, Apr 2023.

Ulrich, C.M., Ratcliffe, S.J., Zhou, Q., Huang, L., Hochheimer, C., Gordon, T., Knafl, K., Miller, V., Naylor, M.D., Schapira, M.M., Richmond, T.S., Grady, C., Mao, J.J.: Association of perceived benefit or burden of research participation with participants’ withdrawal from cancer clinical trials. JAMA Network Open 5(11): e2244412, Nov 2022.

Silva, K. & Miller, V.A.: Parenting and the development of impulse control: The mediating role of negative affect. Applied Developmental Science 26(1): 94-108, 2022.

Fremont, E.R., Friedrich, E.A., Feudtner, C., Grimberg, A., & Miller, V.A. : Perceptions of youth and parent decision-making roles regarding recombinant human growth hormone treatment. Endocrines 3(6): 590-600, 2022.

Agarwal, S., Crespo-Ramos, G., Long, J.A., & Miller, V.A.: “I didn’t really have a choice”: Qualitative analysis of racial-ethnic disparities in diabetes technology use among young adults with type 1 diabetes. Diabetes Technology & Therapeutics 23(9): 616-622, Sep 2021.

Ulrich, C.M., Knafl, K., Foxwell, A., Zhou, Q., Paidipati, C., Tiller, D., Ratcliffe, S.J., Wallen, G., Richmond, T., Naylor, M., Gordon, T., Grady, C., & Miller, V.A.: Experiences of patients after withdrawal from cancer clinical trials. JAMA Network Open 4(8): e2120052, Aug 2021.

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Last updated: 02/28/2024
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