Victoria A. Miller

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Associate Professor of Pediatrics at the Children's Hospital of Philadelphia
Department: Pediatrics

Contact information
The Children's Hospital of Philadelphia
Main Building, Suite 11NW10
34th Street and Civic Center Boulevard
Philadelphia, PA 19104
Office: 267-426-5259
BA (Psychology and Biomedical Ethics)
Brown University, 1997.
MA (Clinical Psychology)
Case Western Reserve University, 2002.
PhD (Clinical Psychology)
Case Western Reserve University, 2005.
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Description of Research Expertise

My overall goal is to conduct developmentally focused research that will inform questions related to child and family decision making about health-related issues.

One area of research has focused on independent self-management of chronic illness, with a particular focus on the development of decision making autonomy and competence. This line of research has underscored that the parent-child relationship is an important context in which decision making independence and competence develop. My current study is an R01-funded longitudinal study to determine the developmental mechanisms, predictors, and outcomes (e.g., treatment adherence and responsibility) of children’s decision making involvement, in children and adolescents with cystic fibrosis or type 1 diabetes.

The second area of research has focused on informed consent and assent in pediatric medical settings. I recently received funding from NIH to examine the potential benefits of children’s involvement in decisions about medical research decisions. I am also a co-investigator on two other studies in this area. One is a prospective cohort study that is following children with life-threatening chronic conditions and their parents, examining the process of decision making and the impact of hopeful patterns of thought, positive and negative affect, and the child’s illness trajectory (PI: Chris Feudtner). The second is a sub-project of a U01 grant (PI: Krantz) to examine informed consent and assent and return of results in the context of genomic sequencing in pediatric settings (PI of sub-project: Bernhardt).

Description of Itmat Expertise

Chronic illness management during childhood and adolescence; decision making, informed consent and assent

Selected Publications

Miller, V.A., Werner-Lin, A., Walser, S.A., Biswas, S., & Bernhardt, B.: An observational study of children’s involvement in informed consent for exome sequencing research. Journal of Empirical Research on Human Research Ethics 12(1): 6-13, 2017.

Agarwal, S., Long, J., & Miller, V.A. : An adult healthcare-based pediatric to adult transition program for emerging adults with type 1 diabetes. The Diabetes Educator 43(1): 87-96, 2017.

Miller, V.A., Feudtner, C., & Jawad, A.F. : Children’s decision making involvement about research participation: Associations with perceived fairness and self-efficacy. Journal of Empirical Research on Human Research Ethics 12(2): 87-96, 2017.

Adams, S.A., Leach, M.C., Feudtner, C., Miller, V.A., & Kenyon, C.C. : Automated adherence reminders for high risk children with asthma: Research protocol. JMIR Research Protocols 6(3): e48, 2017.

Miller, V.A. & Feudtner, C.: Parent and child perceptions of the benefits of research participation. IRB: Ethics & Human Research 38(4): 1-7, 2016.

Werner-Lin, A. Tomlinson, A. Miller, V.A. Bernhardt, B. : Adolescent engagement during assent for exome sequencing. AJOB Empirical Bioethics 7(4): 275-284, 2016 Notes: DOI: 10.1080/23294515.2016.1197983.

Friedrich, E.A., Jawad, A.F., Miller, V.A.: Correlates of problem resolution during parent-child discussions about chronic illness management. Children’s Health Care 45(3): 323-341, 2016.

Landers, S.E., Friedrich, E.A., Jawad, A.F., & Miller, V.A.: Examining the interaction of parental involvement and parenting style in predicting adherence in youth with type 1 diabetes. Families, Systems, & Health 34(1): 41-50, 2016.

Hill DL, Miller VA, Hexem KR, Carroll K, Faerber JA, Kang T, Feudtner, C: Problems and hopes perceived by mothers, fathers, and physicians of children receiving palliative care. Health Expectations 18(5): 1052-1065, 2015.

Feudtner, C., Walter, J.K., Faerber, J.A., Hill, D.L., Carroll, K.W., Mollen, C., Miller, V.A., Morrison, W., Munson, D., Kang, T., & Hinds, P. : Good parent beliefs of parents of seriously ill children. JAMA Pediatrics 169(1): 39-47, 2015.

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Last updated: 07/19/2017
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