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Gastrointestinal Cancer Genetics Program

Gastrointestinal Cancer and Polyposis Registry

What is the Gastrointestinal Cancer and Polyposis Registry?

This is a voluntary research registry offered to patients of the University of Pennsylvania’s Gastrointestinal Cancer Genetics Program who either have or are at risk of having a hereditary gastrointestinal cancer or polyposis syndrome.

What are the goals of the Registry?

The purpose of this registry is to store medical and family history information, including genetic testing information (if applicable), to facilitate research on gastrointestinal cancer and polyposis syndromes. Additionally, being part of the registry will give our program the option to contact you in the future, if and when the following opportunities arise:

  • We have updated information on any of your genetic testing results.
  • New testing options become available that may benefit you or your relatives.
  • There are new research opportunities available that may benefit you or your relatives.
  • There are clinical trials or new therapies for which you may be eligible.
  • There are other new opportunities or advances related to your condition, genetic testing results, or your familial risk, which may benefit you or your family.

See a brochure about the Registry

Read the full Registry consent form

The Gastrointestinal Cancer and Polyposis Registry is approved by the University of Pennsylvania Institutional Review Board under the protocol “Identification and Analysis of Hereditary Gastrointestinal Cancer and Polyposis Syndromes (ID # 826004).”

Principal Investigator: Bryson Katona, MD, PhD

Research Registry Manager: Elizabeth Bromley, MA

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University of Pennsylvania | Perelman School of Medicine