Castleman Disease International Registry

  • Belgium
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  • France
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  • Spain
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  • United Kingdom

Dr. Fajgenbaum is leading a study to collect clinical, laboratory, and patient survey data from patients with Castleman disease to improve understanding, diagnosis, and treatment of the disease. The program, called ACCELERATE (Advancing Castleman Care With an Electronic Longitudinal Registry, E-Repository, And Treatment/Effectiveness Research), has set up an international registry for patients with Castleman Disease. Collection sites are located in the US, Belgium, France, Spain and the UK, among others.