Center for Orphan Disease Research & Therapy


The Center will provide resources and funding opportunities to center members with demonstrated expertise in rare disease research and/or therapy development.

There is no cost to join.

Membership requirements for resources of the Center for Orphan Disease Research and Therapy:

  1. Demonstrated expertise and ongoing research or therapy development in rare disease(s)
  2. Limited to academic appointed faculty members. However, Trainees can become "Associate Members"(see below).
  3. Completion of survey:
Penn and CHOP Faculty and Researchers Go to survey
Faculty and Researchers outside of Penn and CHOP Go to survey
Associate (Non-faculty) Membership
Please note, Associate members will receive all notifications but are unable to apply for center funding/resources.
Go to survey

The survey should take no longer than 15 minutes to complete. For current Center funding opportunities, please view our Grants and Pilot Projects or Outside Resources and Funding Opportunities.

Data from this survey will be shared with industry partners interested in partnering with the Center for Orphan Disease Research and Therapy, and Center members. However, upon completing the survey there is no obligation to participate in industry studies..

H. Lee Sweeney, Ph.D., William Maul Measey Professor of Physiology
Director, Center for Orphan Disease Research and Therapy