Center for Orphan Disease Research and Therapy
Welcome to the Membership Page
The Center will provide resources and funding opportunities to center members with demonstrated expertise in rare disease research and/or therapy development.
There is no cost to join.
Membership requirements for resources of the Center for Orphan Disease Research and Therapy:
1. Demonstrated expertise and ongoing research or therapy development in rare disease(s)
2. Limited to academic appointed faculty members. However, Trainees can become "Affiliated Members" (see 3b below).
3. Completion of survey PENN AND CHOP ONLY:
Penn and CHOP Researchers Click here to start the survey.
3a. Completion of Survey (OUTSIDE Penn and CHOP) Please click Below
OUTSIDE Penn and CHOP Researchers Click here to start the survey.
3b. Completion of Survey for Associate (non-faculty) Membership. Please note, Associate members will receive all notifications but are unable to apply forceter funding/resources.
Associate Membership link survey Click here to start the survey.
The survey should take no longer than 15 minutes to complete. Please go to Research and Funding page for current Center funding opportunities.
Data from this survey will be shared with industry partners interested in partnering with the Center for Orphan Disease Research and Therapy, and Center members. However, upon completing the survey there is no obligation to participate in industry studies.
H. Lee Sweeney, Ph.D., William Maul Measey Professor of Physiology
Director, Center for Orphan Disease Research and Therapy