Center for Orphan Disease Research & Therapy

Outside Funding Opportunities

Request for Proposals: National Organization for Rare Disorders Research Grant Program

  • National Ataxia Foundation Young Investigator Awards
    Closes: 08/01/2014 Maximum:$50,000
  • Vasculitis Foundation Research Program
    Closes: 08/04/2014 Maximum:$50,000
  • National Ataxia Foundation Pioneer SCA Translational Research Award
    Closes: 08/15/2014 Maximum:$100,000
  • National Ataxia Foundation Research Post-Doc Fellowship Award
    Closes: 08/15/2014 Maximum:$35,000
  • World Federation of Hemophilia Clinical Research Grant Program (New)
    Closes: 08/31/2014 Maximum:$100,000
  • FSH Society Research Grant and Fellowships
    Closes 08/31/2014 Inquire with Funder
  • Amyloidosis Foundation Grant Program
    Closes 08/31/2014 Inquire with Funder
  • A-T Children's Project Grant Program
    Closes 09/1/2014 Maximum: $150,000
  • Children's Tumor Foundation Schwannomatosis Awards (NEW)
    Closes 09/1/2014 Maximum: $75,000
  • Mytonic Dystrophy Foundation Fund-a-Fellow Program
    Closes 09/5/2014 Maximum: $100,000
  • Research Projects on Spinal Muscular Atrophy (New)
    Closes 09/5/2014 Maximum: $150,000
  • Cystic Fibrosis Foundation LeRoy Matthews Physician/Scientist Award
    Closes 09/10/2014 Inquire with Funder
  • Cystic Fibrosis Foundation Harry Shwachman Clinical Investigator Award
    Closes 09/10/2014 Inquire with Funder
  • Desmoid Tumor Research Foundation (New)
    Closes 09/15/2014 Inquire with Funder
  • 2014 Angelman Syndrome Foundation Joseph E. Wagstaff Postdoctoral Fellowship Grant
    Closes:10/01/2014 Maximum:$110,000
  • Prader-Willi Syndrome Association Research Grant Program
    Closes:10/07/2014 Maximum:$75,000
  • Progeria Research Foundation Research Grant Program
    Closes:10/27/2014 Maximum: Inquire with Funder
  • Sjogren's Syndrome Foundation
    Closes:02/01/2015 Maximum:$100,000
  • FRAXA Research Foundation Grants and Fellowships Program
    Closes:02/01/2015 Maximum:$100,000
  • Shwachman-Diamond Syndrome Foundation Research Grant Program
    Closes:03/12/2015 Maximum:$70,000
  • Cornelia de Lange Syndrome Foundation Research Grant Program
    Closes:04/30/2015 Maximum:$20,000

Links to Outside Resources

Other Research Opportunities:

Lymphatic Malformation Institute (LMI) ) was established in December, 2010, and is focused, as a whole, on advancing the understanding of the lymphatic system and, specifically, advancing the understanding of the rare lymphatic malformations, Lymphangiomatosis and Gorham's Disease.

The goal of the LMI is to find cures and treatments for these life-threatening disorders that have received very little attention from the scientific community in the past. The LMI seeks to fill this critical gap by identifying, organizing and funding research studies by medical and research professionals, and also working closely with other foundations with similar objectives.  Click here for more information.

Outside Events of Interest:

National Organization for Rare Diseases 2014 Annual Conference, October 21-22, Alexandria, VA
Conference web-site:

Website information RE: Scientific Poster Session. .

The deadline for submission for poster abstracts is July 18, 2014.