Center for Orphan Disease Research & Therapy

Outside Funding Opportunities

Request for Proposals: National Organization for Rare Disorders Research Grant Program

  • 2014 Angelman Syndrome Foundation Joseph E. Wagstaff Postdoctoral Fellowship Grant
    Closes:10/01/2014 Maximum:$110,000
  • Prader-Willi Syndrome Association Research Grant Program
    Closes:10/07/2014 Maximum:$75,000
  • Oxalosis & Hyperoxaluria Foundation Research Grant Program (New)
    Closes:10/15/2014 Maximum:$160,000
  • United Leukodystrophy Foundation Research Grant Program (New)
    Closes:10/15/2014 Maximum:$35,000
  • Progeria Research Foundation Research Grant Program
    Closes:10/27/2014 Maximum: Inquire with Funder
  • Alport Syndrome Foundation Paul Silver Tribute Award (New)
    Closes:11/01/2014 Maximum:$1,000
  • Osteogenesis Imperfecta Foundation Michael Geisman Fellowship Awards (New)
    Closes:11/01/2014 Maximum:$50,000
  • Soft Bones, Inc. Research Grant (New)
    Closes:12/15/2014 Maximum:$25,000
  • Grant for Adult Attendance of the 2015 Annual Membership Meeting of the National Ataxia Foundation (New)
    Closes:1/09/2015 Maximum: Inquire with Funder
  • Sjogren's Syndrome Foundation Research Grants Program
    Closes:02/01/2015 Maximum:$100,000
  • FRAXA Research Foundation Grants and Fellowships Program
    Closes:02/01/2015 Maximum:$100,000
  • FacioScapuloHumeral Muscular Dystrophy Society Research Grants and Fellowships (New)
    Closes:02/28/2015 Maximum: Inquire with Funder
  • Shwachman-Diamond Syndrome Foundation Research Grant Program
    Closes:03/12/2015 Maximum:$70,000
  • Cornelia de Lange Syndrome Foundation Research Grants Program
    Closes:04/30/2015 Maximum:$20,000
  • Children's Fund for Glycogen Storage Disease Research Grants Program (New)
    Closes:04/30/2015 Maximum:$20,000
  • FacioScapuloHumeral Muscular Dystrophy Society Research Grants and Fellowships (New)
    Closes:08/31/2015 Maximum: Inquire with Funder

Links to Outside Resources

Other Research Opportunities:

Lymphatic Malformation Institute (LMI) ) was established in December, 2010, and is focused, as a whole, on advancing the understanding of the lymphatic system and, specifically, advancing the understanding of the rare lymphatic malformations, Lymphangiomatosis and Gorham's Disease.

The goal of the LMI is to find cures and treatments for these life-threatening disorders that have received very little attention from the scientific community in the past. The LMI seeks to fill this critical gap by identifying, organizing and funding research studies by medical and research professionals, and also working closely with other foundations with similar objectives.  Click here for more information.

Outside Events of Interest:

National Organization for Rare Diseases 2014 Annual Conference, October 21-22, Alexandria, VA
Conference web-site: https://www.rarediseases.org/news-events/2014-summit

Website information RE: Scientific Poster Session.http://cdn2.hubspot.net/hub/200783/file-889693234-pdf/PC14015_PosterSubmission.pdf .

The deadline for submission for poster abstracts was July 18, 2014.