Links You Can Use

For those wishing to learn more about Parkinson's disease, the following online resources will be of assistance. Click on the category or the name of the organization to be connected with each website. Where there is no website, a phone number is listed.

Parkinson's Disease Organizations	Government Agencies
Professional Societies/Associations	Information on Clinical Trials
Patient-Directed Health Sites	Physician-Directed Health Sites
Mailing Lists/Newsgroups	Movement Disorders Organizations
Housing Information	Caregiver Associations
Exercise Resources	Neurology Journals from The Lancet

Parkinson's Disease Organizations

Morris K. Udall Centers of Excellence for Parkinson's Disease Research
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20824
Phone: 800-352-9424 or 301-496-5751
TTY (for people using adaptive equipment): 301-468-5981
American Parkinson Disease Association
1250 Hylan Boulevard, Suite 4B
Staten Island, NY 10305-1946
Phone: 718-981-8001; 800-223-2732
Find local information and referral centers: 888-400-2732
European Parkinson's Disease Association
PD information and news on-line
CenterWatch Clinical Trials Listing Service
Dana Alliance for Brain Initiatives
745 Fifth Avenue, suite 700
New York, NY 01051
Email: danainfo@dana.org
National Parkinson Foundation
1501 N.W. 9th Avenue/Bob Hope Road
Miami, FL 33136-1494
phone: 305-243-6666; 800-327-4545
Parkinson Association of the Carolinas
1401 East Seventh Street
Charlotte, NC 28204
Phone: 704-375-0172
Fax: 704-332-0025
Email: info@parkinsonassociation.org
Parkinson's Disease Research Web
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
The Parkinson's Institute
1170 Morse Avenue
Sunnyvale, CA 94089-1605
Phone: 408-734-2800; 800-786-2958

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Movement Disorders Organizations

National Parkinson Foundation (Education, Research, Information, Referral, Outreach)
800-327-4545
Michael J. Fox Foundation for Parkinson’s Research
Parkinson’s Action Network (Funding, Legislation, Research)
800-850-4726
The Parkinson Council (Research, Education, Advocacy, Support)
The Parkinson Alliance (Research)
1-800-579-8440
Parkinson’s Disease Foundation ( Education, Research, Advocacy)
212-923-4700 and 800-457-6676
Advancing Parkinson’s Therapies: Parkinson’s Disease Clinical Trials
National Institute of Health/National Institute of Neurological Disorders and Stroke (NINDS) (Research and information)
800-352-9424
WE MOVE - Worldwide Education and Awareness for Movement Disorders
212-875-8312 and 800-437-MOV2 and 800-675-5752
European Parkinson's Disease Association (Resource materials)
International Essential Tremor Foundation
888-387-3667
Dystonia Medical Research Foundation
312-755-0198
Restless Legs Syndrome Foundation
877-463-6757

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Government Agencies

FDA Consumer Drug Information	National Institutes of Health
healthfinder	National Institute of Neurological Disorders & Stroke
MEDLINEplus	National Library of Medicine
MEDLINE (search the medical literature)	U.S. Food and Drug Administration (FDA)
PubMed - free access to MEDLINE	Medicare Hotline and Information 800-633-4227
ElderCare Search

Professional Societies/Associations

American Academy of Neurology	Association of Academic Physiatrists
American Academy of Physical Medicine & Rehabilitation	Association of Rehabilitation Nurses
American Association of Neuroscience Nurses	Canadian Congress of Neurological Sciences
American Congress of Rehabilitation Medicine	European Federation of Neurological Societies
American Neurological Association	European Neurological Society
American Occupational Therapy Association	International Society of Physical and Rehabilitation Medicine - ISPRM
American Physical Therapy Association	Movement Disorder Society
American Society for Experimental NeuroTherapeutics	National Society of Genetic Counselors
American Society for NeuroRehabilitation	New York Academy of Sciences
American Speech-Language Hearing Association	National Ataxia Foundation

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Patient-Directed Health Sites

American Heart Association	Neurologychannel.com
Dana Alliance for Brain Initiatives	NORD (National Organization for Rare Disorders)
GeneClinics	Pathways Awareness Foundation
Huntington-Study-Group	People Living With Parkinson's
International Network of Ataxia Friends	Stroke Center
Melvin Weinstein Parkinson's Foundation	The Parkinson Alliance