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We hope you will join us for the Penn Frontotemporal Degeneration (FTD) Center's Annual Caregiver Conference (in-person) on Friday, October 14, 2022, from 8:00am-3:00pm EDT at the Smilow Center for Translational Research. Breakfast will be served beginning at 7:30am.

The Penn FTD Center’s annual Caregiver Conference is for those diagnosed with FTD, and their caregivers, family, and friends to access information and support. With presentations from leading experts in neurology, clinical care, genetics, cognitive neuroscience, and more, attendees will hear the latest on innovative treatments, diagnostics, and practical caregiver strategies. To view the agenda for the conference, click here

As always, our goal is to empower caregivers and deliver real-time updates. 

REGISTER HERE

We are also excited to share some opportunities to support this event. The Annual Caregiver Conference would not be possible without the kindness of our patients and friends. Click here to find out how you and your network can donate to support this event and make a direct impact on the Penn FTD Center's mission to educate our patients and their care partners. As a reminder, this event is offered free of charge, but there is an option to make a gift to the Penn FTD Center Patient & Caregiver Education Fund when you complete your registration. We also have sponsorship opportunities available, which you can learn about here.

If you have any questions, please reach out to Olivia Vozzella at Olivia.Vozzella@Pennmedicine.upenn.edu. On behalf of the entire Penn FTD Center, thank you for your interest and support. We hope to see you in October.


The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions.   Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration. 

The research expertise at the Penn FTD Center  spans many levels of neuroscience ranging from detailed clinico-pathological studies, biomarker discovery, genetics, neuropsychological studies, functional and structural neuroimaging, and cognitive neuroscience investigations of language, memory, and social cognition. 

 

Through the Eyes of the Caregiver: Frontotemporal Degeneration (FTD) and the Penn FTD Center

Frontotemporal degeneration (FTD) is a debilitating neurodegenerative disease that dramatically affects the lives of both the patient and their loved ones. Hear the stories of three dedicated FTD caregivers and their experience with the Penn Frontotemporal Degeneration Center.

Resources for Caregiver

The early age of onset of many FTD disorders and the changes in behavior and language that can accompany them can make living with FTD a challenge for both caregivers and patients. Resources are available to support the unique needs of each patient and their caregivers. 

 

 

Diversity Statement

The Penn FTD Center strongly affirms diversity and inclusiveness in our center, in the families we serve, in the University of Pennsylvania, and in biomedical research.  We recognize that justice requires that we at the FTDC work to better defend and reflect the diversity of race, religion, ethnicity, sexual orientation, gender identity and national origin that enriches our community.  We abhor the division and violence that deny the full humanity of all members of our society.  Please see our full statement.

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