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REGISTER TODAY: Penn FTDC Familial Conference 2023

We are thrilled to announce that the Penn FTD Center will be hosting our third annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Tuesday, February 28, 2023, from 3:00PM-5:30PM EST.

Our team understands ALS, FTD, and related disorders can impact an entire family even when just one person is diagnosed. We also recognize the unique challenges and situations that arise from familial or genetic disease and have designed this exclusive event to recognize and address these topics for people living with or at risk for a familial and/or genetic form of FTD/ALS. You will have the chance to hear from genetic counselors, neurologists, and social workers on the genetics of FTD and ALS—and have the chance to ask your questions in real-time.



          The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our team of experts include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration. 


           The research expertise at the Penn FTD Center spans many levels of neuroscience ranging from detailed clinico-pathological studies, biomarker discovery, genetics, neuropsychological studies, functional and structural neuroimaging, and cognitive neuroscience investigations of language, memory, and social cognition. 


Through the Eyes of the Caregiver: Frontotemporal Degeneration (FTD) and the Penn FTD Center

Frontotemporal degeneration (FTD) is a debilitating neurodegenerative disease that dramatically affects the lives of both the patient and their loved ones. Hear the stories of three dedicated FTD caregivers and their experience with the Penn Frontotemporal Degeneration Center.

Resources for Caregiver

The early age of onset of many FTD disorders and the changes in behavior and language that can accompany them can make living with FTD a challenge for both caregivers and patients. Resources are available to support the unique needs of each patient and their caregivers. 


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  • Penn FTD Center Virtual Familial Conference Tuesday, February 28, 2023

    Please save the date for our virtual Familial Conference on Tuesday, February 28, 2023. More details and a formal invitation to follow. We hope to see you there!

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