The Penn FTD Center | Home
To educate the community, both local and national, about young-onset dementias such as Frontotemporal degeneration, and; to increase local engagement and interest in research at the UPenn Frontotemporal Degeneration Center (FTDC). These activities will help promote a community of support, access to resources, and improved outcomes for individuals with early onset-dementia and their families.
The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our team of experts include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration.
The research expertise at the Penn FTD Center spans many levels of neuroscience ranging from detailed clinico-pathological studies, biomarker discovery, genetics, neuropsychological studies, functional and structural neuroimaging, and cognitive neuroscience investigations of language, memory, and social cognition.
Through the Eyes of the Caregiver: Frontotemporal Degeneration (FTD) and the Penn FTD Center
Frontotemporal degeneration (FTD) is a debilitating neurodegenerative disease that dramatically affects the lives of both the patient and their loved ones. Hear the stories of three dedicated FTD caregivers and their experience with the Penn Frontotemporal Degeneration Center.
The early age of onset of many FTD disorders and the changes in behavior and language that can accompany them can make living with FTD a challenge for both caregivers and patients. Resources are available to support the unique needs of each patient and their caregivers.
PENN FTD CENTER EVENTS
Webinar: Genetic Counselling and Testing, Familial or sporadic ALS/MND
Wednesday, March 29, 2023
For familial or sporadic ALS/MND, the importance of genetic counselling and testing can´t be emphasized enough. Join the International Alliance of ALS/MND Associations for this scenario-based discussion with Penn FTD Center's Genetic Counselor, Laynie Dratch, which will look at real situations ranging from an ALS/MND asymptomatic carrier to someone whose parent had ALS/MND, but has not done genetic testing.