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Through the Eyes of the Caregiver: Frontotemporal Degeneration (FTD) and the Penn FTD Center

Frontotemporal degeneration (FTD) is a debilitating neurodegenerative disease that dramatically affects the lives of both the patient and their loved ones. Hear the stories of three dedicated FTD caregivers and their experience with the Penn Frontotemporal Degeneration Center.

The early age of onset of many FTD disorders and the changes in behavior and language that can accompany them can make living with FTD a challenge for both caregivers and patients. Resources are available to support the unique needs of each patient and their caregivers. 




Areas Of Expertise

The research expertise at the Penn FTD Center  spans many levels of neuroscience ranging from detailed clinico-pathological studies, biomarker discovery, genetics, neuropsychological studies, functional and structural neuroimaging, and cognitive neuroscience investigations of language, memory, and social cognition. 


Recent Center publications have spanned such topics as white matter imaging in tauopathy forms of FTD, ALS genetic markers, and criteria for the diagnosis of primary progressive aphasia and behavioral variant FTD.   

Training and Career Opportunities

The Penn FTD Center provides an excellent training environment for undergraduate students, graduate students, clinical fellows, and research fellows to facilitate the education of the next generation of world-leading Frontotemporal degeneration  experts.

Diversity Statement

The Penn FTD Center strongly affirms diversity and inclusiveness in our center, in the families we serve, in the University of Pennsylvania, and in biomedical research.  We recognize that justice requires that we at the FTDC work to better defend and reflect the diversity of race, religion, ethnicity, sexual orientation, gender identity and national origin that enriches our community.  We abhor the division and violence that deny the full humanity of all members of our society.  Please see our full statement.


  • Annual Caregiver Conference Canceled

    Our annual Caregiver Conference typically takes place in the spring. Due to ongoing concerns about the COVID-19 pandemic, the in-person 2020 Caregiver Conference has been cancelled. Please follow the link for access to our virtual conference:

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