The Armellino Center of Excellence for Williams Syndrome provides medical and behavioral services for individuals of all ages. In addition, our clinical providers and researchers work together to conduct meaningful research that will impact the lives of individuals with Williams syndrome both today and in the future. 

Clinical Program

At ACE-WS, we provide medical and behavioral health services for individuals of all ages. Whether you live down the street or across the country, our team will work with you to ensure there is a cohesive care plan from your medical and behavioral health providers and the support needed to help you implement recommendations. 

Read more about our Clinical Program

Research 

Our mission is to conduct research that characterizes and targets WS-specific health problems, including mental/behavioral health and underlying molecular events. Ultimately, our research program will address the full spectrum of bench to bedside to community research. Here are just a few of the research initiatives our Center is actively engaging in: 

• We are conducting a natural history genotype-phenotype study (defining which genetic changes are responsible for certain manifestations of WS).  
• We are supporting a study that explores existing transition to adulthood practices to identify best practice and develop guidelines for individuals with WS. 
• We are building a biobank enabling the development of new laboratory tools and models to study WS. We aim to understand which treatment approaches – including medical, behavioral, and educational – are most beneficial for overcoming challenges-associated with WS. 
• We participate in CReWS (Collaborative the Collaborative Registry for Williams Syndrome), a community of scientists and physicians united to share knowledge, create unified health guidance and perform collaborative research. 

   

Education 

ACE-WS aims to collect, organize, and expand the knowledge on Williams syndrome. We have recently launched educational sessions for local families and are collaborating with CReWS to record online seminars focused on various medical aspects of WS. We partner closely with the Williams Syndrome Association (WSA) to mutually support our goals of making up-to-date information broadly available to families and professionals. We would love to hear from you! Please email us with your ideas and requests for educational series you would like to participate in!  

What This Means  

Our team is here to provide comprehensive care, research, and support for individuals of all ages in the Williams syndrome community. Whether your loved one that would benefit from seeing our medical and behavioral health providers, you want to get involved in research, or maybe you just want to participate in our virtual or in person educational programming, we are here to serve you. 

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