CReWS Study

The Collaborative Registry for Williams Syndrome, also known as CReWS, was developed by the Williams Syndrome Association to collect data on people diagnosed with Williams syndrome (WS). Those who wish to participate in the study will be invited to fill out surveys regarding their medical, developmental, and social concerns both upon registering and then periodically moving forward. The data collected will not only help families connect to doctors and scientists currently researching WS, but it will also allow for the advancement of our understanding of Williams syndrome, it’s underlying causes, and to develop better treatments. For more information, regarding the CReWS study, please visit the WSA's CReWS website, watch a video, or contact us!