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Victoria A. Miller, PhD

Victoria A. Miller, PhD

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Assistant Professor of Pediatrics at the Children's Hospital of Philadelphia
Department: Pediatrics

Contact information
The Children's Hospital of Philadelphia
Department of Anesthesiology and Critical Care Medicine
34th Street and Civic Center Boulevard
Philadelphia, PA 19104
Office: 267-426-5259
Fax: 267-426-5035
Education:
BA (Psychology and Biomedical Ethics)
Brown University, 1997.
MA (Clinical Psychology)
Case Western Reserve University, 2002.
PhD (Clinical Psychology)
Case Western Reserve University, 2005.
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Description of Research Expertise

My overall goal is to conduct developmentally focused research that will inform questions related to child and family decision making about health-related issues.

One area of research has focused on independent self-management of chronic illness, with a particular focus on the development of decision making autonomy and competence. This line of research has underscored that the parent-child relationship is an important context in which decision making independence and competence develop. My current study is an R01-funded longitudinal study to determine the developmental mechanisms, predictors, and outcomes (e.g., treatment adherence and responsibility) of children’s decision making involvement, in children and adolescents with cystic fibrosis or type 1 diabetes.

The second area of research has focused on informed consent and assent in pediatric medical settings. I recently received funding from NIH to examine the potential benefits of children’s involvement in decisions about medical research decisions. I am also a co-investigator on two other studies in this area. One is a prospective cohort study that is following children with life-threatening chronic conditions and their parents, examining the process of decision making and the impact of hopeful patterns of thought, positive and negative affect, and the child’s illness trajectory (PI: Chris Feudtner). The second is a sub-project of a U01 grant (PI: Krantz) to examine informed consent and assent and return of results in the context of genomic sequencing in pediatric settings (PI of sub-project: Bernhardt).

Description of Clinical Expertise

Clinically, I provide consultation and treatment to children and adolescents with chronic illnesses (e.g., cancer; cystic fibrosis) and their families, with a focus on improving coping and adaptation, decreasing distress and family conflict related to the illness, and increasing treatment adherence. I utilize both family therapy and cognitive-behavioral techniques in my work with children and families.

Selected Publications

Miller VA, Nelson RM: Factors related to voluntary parental decision making in pediatric oncology. Pediatrics 129(5): 903-909, 2012.

Miller VA, Harris D: Measuring children’s decision making involvement regarding chronic illness management. Journal of Pediatric Psychology 37(3): 292-306, 2012.

Hexem K, Miller VA, Carroll K, Feudtner C: Putting on a happy face: Emotional expression in parents of children with serious illness. Journal of Pain and Symptom Management 45(3): 542-551, 2013.

Miller VA, Luce MF, Nelson RM: Relationship of external influence to parental distress in decision making regarding children with a life-threatening illness. Journal of Pediatric Psychology 36(10): 1102-1112, 2011.

Cousino M, Hazen R, Yamokoski A, Miller V, Zyzanski S, Drotar D, Kodish E: Parent participation and physician-parent communication during informed consent in pediatric leukemia. Pediatrics 128(6): e1544-e1551, 2011.

Miller VA, Ittenbach RI, Harris D, Reynolds WW, Beauchamp TL, Luce MF, Nelson RM: The Decision Making Control Instrument to assess voluntary consent. Medical Decision Making 31(5): 730-741, 2011.

Nelson RM, Beauchamp TL, Miller VA, Reynolds WW, Ittenbach RI, Luce MF : The concept of voluntary consent. American Journal of Bioethics 11(8): 6-16, 2011.

Miller VA, Reynolds WW, Ittenbach RF, Luce MF, Beauchamp TL, Nelson RM: Challenges in measuring a new construct: Perception of voluntariness for research and treatment decision making. Journal of Empirical Research on Human Research Ethics 4(3): 21-31, 2009.

Miller VA: Parent-child collaborative decision making for the management of chronic illness: A qualitative analysis. Families, Systems & Health 27(3): 249-266, 2009.

Miller VA, Reynolds WW, Nelson RM: Parent-child roles in decision-making about medical research. Ethics & Behavior 18(2-3): 161-181, 2008.

Miller VA, Nelson RM: Moving beyond the consent document in research on informed consent. Archives of Pediatrics & Adolescent Medicine 159(4): 396-397, 2005.

Miller VA, Nelson RM: A developmental approach to child assent for non-therapeutic research. Journal of Pediatrics 149(1, Supp): S25-S30, 2006.

Miller VA, Drotar D, Kodish E: Children's competence for assent and consent: A review of empirical findings. Ethics & Behavior 14(3): 255-295, 2004.

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Last updated: 09/05/2014
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