Resources and Support Groups
Online Resources
For those wishing to learn more about Parkinson's disease, the following online resources will be of assistance.
Support Groups
A support group is a way for people to help each other cope with a problem that they all share. Support groups are not just for patients. Many groups are available for care partners or caregivers, family members of patients and friends. Members give and receive information and encouragement through email/mail, phone calls and group meetings. Most groups meet monthly.
For a PDF brochure of Parkinson's Disease support groups in Pennsylvania, New Jersey and Delaware, click here.
For those who wish to access only a list online, click here.
Speciality Support Groups
Speciality support groups exist for other movement disorders and for special Parkinson's groups.
Here is a partial list of support groups for movement disorders other than Parkinson's:
- Huntington's Disease Society
- Phone 610-277-1066; call for information on when this group meets
- Dystonia Medical Research Foundation
- at Paoli Memorial Hospital; contact Art Hindle at 610-459-2242 for dates and times of group meetings
- Lewy Body Dementia Caregivers Online Support Group
- This group provides support and information for Lewy Body Dementia caregivers. Click to join.
- Essential Tremor
- at Penn Neurological Institute; contact Suzanne Reichwen at 215-829-7273; group meets 1st Saturday of every other month at 10am
- Parkinson Plus Group
- at Penn Neurological Institute; contact Jennifer Marcus-Aquaviva at 215-829-5071; group meets 2nd Saturday of every other month at 10am
Here is a listing of speciality Parkinson's disease support groups:
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