About Ataxia

There is not yet a known cure for spinocerebellar ataxia, however, there is evidence-based care that can help patients improve physical functioning and optimize quality of life. There is ongoing research into treatments that can cure or slow the progression of ataxia. There are some medications available that can treat certain symptoms of ataxia.

 

The mainstay of symptom management for ataxia is through a combination of physical, occupational, and speech therapy.  Here at the Penn Ataxia Center, we are very excited to be able to offer patients and families the opportunity to meet with these therapy services and the additional support of social work and clinical research coordinators in one comprehensive visit day.

 

For more information about ataxia, please visit the National Ataxia Foundation website. 

 

Locally here in Philadelphia, Mr. Jay Armstrong runs a virtual support group via Zoom. Dates for 2023 are as follows:

21 April 23  at  11 am

16 June 23  at  11 am

15 September 23  at  11 am

24 November 23  at  11 am

To access the meetings, please email Mr. Armstrong at <writeonfighton@gmail.com>

Mr.Armstrong also has a blog where he discusses his experience with ataxia and writes on all matter of topics:

WriteOnFightOn - Stories Told. Lives Changed.