5506: The EGPA Registry

CURRENTLY ENROLLING: YES

 

The EGPA Registry is being conducted to learn more about eosinophilic granulomatosis with polyangiitis (EGPA), also known as a Churg-Strauss by following a large group of patients for several years. The data from this study will be used by scientists to study the causes of EGPA, understand better what patients feel with EGPA, find new ways to track disease and predict responses, to understand how to best treat patients with EGPA.

NO. There are no medications involved with this study.

The study will collect information from patient’s medical charts, questionnaires, and some blood samples from patients with EGPA.

Participants must have a diagnosis of EGPA and be under the care of a Penn Medicine rheumatologist.

The study will last about 5 years.

Clinical information and blood and urine specimens will be collected at your usual clinic visits. The types of information collected will include medical history details, medication use, physical exam findings, results of laboratory and diagnostic imaging tests (x-rays, MRIs, PET scans). Blood and urine specimens will be collected and sent to research laboratories that are looking to discover proteins, genes, and other chemicals that could serve as new biomarkers.

Thank you for your interest! If you wish to learn more and sign up for the study, please contact:

SARAH GILLESPIE
rheumatologyresearch@uphs.upenn.edu
215-614-4417