ADRC News

June 17, 2024 Discover the Latest in Alzheimer’s and Dementia Research at “AAIC For All”

Members of the public and clinicians are invited to learn about advancements in Alzheimer’s and dementia research at the upcoming AAIC For All event, a no-cost, single-day extension of the Alzheimer’s Association International Conference (AAIC). This event provides a unique platform for both clinicians and the general public to engage with the latest research findings and developments in dementia science. About AAIC For All AAIC For All offers an invaluable opportunity to hear directly from leading Alzheimer’s and dementia researchers. Set on the final day of the AAIC, this event ensures attendees are among the first to learn about cutting-edge Read More The post Discover the Latest in Alzheimer’s and Dementia Research at “AAIC For All” appeared first on Penn Memory Center. Continue reading Discover the Latest in Alzheimer’s and Dementia Research at “AAIC For All”

June 5, 2024 House Committee Approves Bill to Extend Telehealth Access

On May 8, the U.S. House of Representatives Ways and Means Committee unanimously passed a bipartisan bill entitled the “Preserving Telehealth, Hospital, and Ambulance Access Act.” This bill aims to extend several telehealth flexibilities, including removing geographic restrictions from beneficiaries, expanding originating sites, and allowing clinicians such as occupational therapists and speech-language pathologists to provide services via telehealth. It also seeks to expand audio-only telehealth coverage, reduce in-person requirements for mental health service coverage, and enhance support for individuals with limited English proficiency. The bill reflects an important continuation of bipartisan support since the rapid increase of telemedicine in 2020. Read More The post House Committee Approves Bill to Extend Telehealth Access appeared first on Penn Memory Center. Continue reading House Committee Approves Bill to Extend Telehealth Access

May 21, 2024 From Neighborly Lift to Lifelong Legacy: The Kungs’ Decision to Donate their Brains

By Meghan McCarthy Ed and Marcia Kung first discovered the Penn Memory Center (PMC) in 2008 when a neighbor asked for a ride to an appointment with his Alzheimer’s doctor. For the 15 years since, they have been dedicated participants in the center’s Aging Brain Cohort (ABC) study, even planning to donate their brains for scientific advancement after death. Though without cognitive complaints, their decade-plus commitment to research has trickled into their end-of-life plans. It sounds paradoxical, but the Kungs say the decision to donate their brains was relatively simple: they understood the importance of brain donation, specifically from healthy Read More The post From Neighborly Lift to Lifelong Legacy: The Kungs’ Decision to Donate their Brains appeared first on Penn Memory Center. Continue reading From Neighborly Lift to Lifelong Legacy: The Kungs’ Decision to Donate their Brains

May 15, 2024 Bob’s Last Marathon Podcast joins Penn Memory Center

‘Bob’s Last Marathon’ podcast has found a new home at the Penn Memory Center (PMC), where it continues to serve as an invaluable resource for those affected by Alzheimer’s and other dementias. The podcast, which has aired over 75 episodes since its launch in January 2021, explores a broad range of topics—from daily living tips for patients to legal and financial advice. The podcast was inspired by the personal journey of Lena Chow Kuhar, who started the podcast after her husband, Robert Kuhar, was diagnosed with mixed dementia at PMC in 2013. Their story began over three decades ago when Read More The post Bob’s Last Marathon Podcast joins Penn Memory Center appeared first on Penn Memory Center. Continue reading Bob’s Last Marathon Podcast joins Penn Memory Center

May 13, 2024 Penn Memory Center hosts a virtual conversation with Dr. Allison Applebaum on her new caregiving book

On April 18, the Penn Memory Center hosted a compelling virtual conversation with Allison Applebaum, PhD, author and founding director of the Caregiving Clinic at Memorial Sloan Kettering Cancer Center. The discussion centered around her latest book, “Stand by Me: A Guide to Navigating Modern, Meaningful Caregiving.” Drawing from over a decade of clinical expertise and research, along with her personal experiences as the primary caregiver for her father, renowned composer Stanley Applebaum, Dr. Applebaum offered profound insights into the caregiving journey. She underscored the critical role caregivers play as indispensable members of healthcare teams. During the event, Dr. Applebaum Read More The post Penn Memory Center hosts a virtual conversation with Dr. Allison Applebaum on her new caregiving book appeared first on Penn Memory Center. Continue reading Penn Memory Center hosts a virtual conversation with Dr. Allison Applebaum on her new caregiving book

May 8, 2024 The Hidden Struggle: Caregiving During the Pandemic

By Meghan McCarthy Four years ago, SARS-CoV-2, the virus that causes Coronavirus disease (COVID-19), brought the world to a halt. Grocery stores became eerily quiet. Masks and disinfectants sold out. Social distancing became the norm, and Zoom became a household name. The news became saturated with harrowing stories of overwhelmed hospitals and grim toll on patients. In the four years since March 2020, researchers have documented and explained the long-term impact of COVID-19 on individuals’ health and wellbeing. Patients skipped routine checkups and annual screenings. Clinician burnout soared to an all-time high. For individuals with Alzheimer’s disease and related dementias Read More The post The Hidden Struggle: Caregiving During the Pandemic appeared first on Penn Memory Center. Continue reading The Hidden Struggle: Caregiving During the Pandemic

May 2, 2024 PMC welcomes new outreach coordinator, Leah Barnes

By Meghan McCarthy Earlier this year, the Penn Memory Center (PMC) welcomed Leah Barnes, BS, to the communications team as an outreach coordinator. At PMC, Barnes’ outreach will focus on clinical research. “I have always had an interest in bridging the gap between health resources and individuals who are usually least likely to receive care whether that be due to factors such as finances, access, education, transportation, or trust,” Barnes said. “This work allows me to be able to improve access to education and care surrounding Alzheimer’s disease for individuals who are the least likely to be reached due to Read More The post PMC welcomes new outreach coordinator, Leah Barnes appeared first on Penn Memory Center. Continue reading PMC welcomes new outreach coordinator, Leah Barnes

May 1, 2024 Felicia Greenfield’s Role has Changed, but Her Commitment is Steadfast

By Meghan McCarthy Over twenty years ago, Felicia Greenfield, MSW, LCSW, was an observant English teacher in Durham, North Carolina. Each day, Greenfield returned home from school impassioned. Watching how past and present traumas impacted teens in the classroom, she questioned how to cultivate a rich learning environment for her students. Her curiosity extended beyond the classroom, spurred by her relationship with her then landlord who worked in child welfare and introduced her to social work. Greenfield soon embraced her newfound career path, moving to Philadelphia in 2001 to ultimately pursue a Master of Social Work at the University of Read More The post Felicia Greenfield’s Role has Changed, but Her Commitment is Steadfast appeared first on Penn Memory Center. Continue reading Felicia Greenfield’s Role has Changed, but Her Commitment is Steadfast

April 24, 2024 Technology at the Crossroads: Navigating Dementia and Independence

By Meghan McCarthy  Editor’s Note: In light of the 2024 PennAITech Symposium, this article is a part of ongoing coverage on the intersection of technology and dementia. Names have been changed to protect PMC patient privacy. We sincerely thank the family involved in sharing their story with our community. When Zachary Collins set out for a drive to Downingtown, the route was seemingly simple. Twenty miles west of his home, neither he nor his wife, Mary, thought much of the outing.   Until Zachary found himself in Delaware.    It was then that the pair fully appreciated the Waze app.   Two Read More The post Technology at the Crossroads: Navigating Dementia and Independence appeared first on Penn Memory Center. Continue reading Technology at the Crossroads: Navigating Dementia and Independence

April 24, 2024 365 Calls Later: What FaceTime Meant to my Family During the Pandemic

By Meghan McCarthy  Editor’s Note: In light of the 2024 PennAITech Symposium, this article is a part of ongoing coverage on the intersection of technology and dementia.   I was in sixth grade when my family moved to Pennsylvania. Born and raised in Massachusetts, the prospect of the move seemed alike to epic adventures I would read as a kid.   In the years that passed, living in the Keystone State became familiar. I grew to love Wawa and enjoyed a soft pretzel school snack. I identified New England versus Pennsylvania vernacular, such as ‘bubbler’ versus ‘water fountain’ and ‘sub’ versus ‘hoagie.’ Read More The post 365 Calls Later: What FaceTime Meant to my Family During the Pandemic appeared first on Penn Memory Center. Continue reading 365 Calls Later: What FaceTime Meant to my Family During the Pandemic

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