Relapsing Polychondritis Longitudinal Cohort

The RP Longitudinal Cohort is being done to learn more about Relapsing Polychondritis (RP) by following a large group of patients for several years. The data from this study will be used by scientists to study the causes of RP, understand better what patients feel with RP, find new ways to track symptoms and predict responses, and to understand how to best treat patients with RP.

NO, you do not need to take any medication for this study.

The study will collect information from patient’s medical charts, questionnaires, and blood and urine samples.

Participants must have a diagnosis of RP and be under the care of a Penn Medicine rheumatologist.

You could be in the study for up to 10 years.

Clinical information and blood and urine specimens will be collected at your usual clinic visits. The types of information collected will include medical history, medication use, physical exam findings, and laboratory and diagnostic imaging tests (x-rays, MRIs, etc.) results. Blood and urine specimens will be collected and sent to research laboratories that are studying proteins, genes, and other chemicals that could serve as new biomarkers.

Thank you for your interest! If you wish to learn more and sign up for the study, please contact:

Daniel Killion
rheumatologyresearch@uphs.upenn.edu
215-614-4417