Upcoming Events

Please click on the toggles to reveal more information about each event and how to register/sign up. Please contact us with any questions.

Click HERE to see some photos from our past events!

Please click on the event title above to view our support group schedule and how to register!

HD Center of Excellence at Penn Medicine's Support Group/Webinar Schedule: 


Wednesday, November 17th, 2021 at 4:00 pm

Discussion facilitated by Lauren Zelouf, MSW, LSW


**To reserve your slot:**

Please RSVP to Lauren Zelouf, MSW, LSW

Phone: 215-829-3038 or message us on MyPennMedicine

(*Link and directions will be sent when we confirm your space*)

(Find Support Group information, under Patient Care tab Support Group or click here)

The NYA is taking important topics and hosting hour-long sessions about them every other Saturday from 12:00 pm - 1:00 pm. Each session will be facilitated by HDSA youth social workers and NYA board members. These talks are open to folks 12-29 who are in any way impacted by HD. This means if you have JHD, are gene-positive, gene-negative, at risk, not at risk but in an HD family, a partner of a person who has HD in their family, or a friend of someone who has HD in their family, you're welcome to join to connect and find support! We look forward to seeing you! 

Please click on the event title above to view the discussion topics, schedule, and how you can register!

Virtual National Youth Alliance (NYA) Mini-Series Discussion Schedule:

Upcoming Sessions

  • 10/30: HD Emergency Resources
  • 11/13: Grief and Coping with the Holidays

Please Click HERE to Register!