At Your Multidisciplinary Visits
The focus of multidisciplinary visits are collaborative and cohesive services that occur on the same day and in the same location over the course of 3-4 hours. Multidisciplinary scheduling involves appointments with our lead WS physician, cardiology, physical therapy, occupational therapy, and psychology. Specialists will cycle in and out of your room for 1-hour appointments.
Once A Date Is Set
Once a date is set, our program coordinator will send you a letter via the myCHOP or myPennMedicine portal with links to important information on our website for your review. If you are not set up on the myCHOP or myPennMedicine portal, inform our program coordinator so they can assist you with the setup.
Helpful Information:
- During the scheduling process, please ignore any myCHOP or myPennMedicine notifications you receive.
If you expressed interest in learning more about research opportunities at ACE-WS, our clinical research coordinator will reach out to you via your preferred contact method a few weeks before your visit
One Week Prior
Our program coordinator will reach out to you one week before your visit to:
- Confirm your appointments.
- Address any questions you may have and discuss any additional coordination needed.
- Determine if you would like to meet with the program coordinator or another team member upon arrival for assistance navigating to your appointments. If you decide not to use this assistance, rest assured that our program coordinator will be available throughout the day for any last-minute questions or support.
Following this call, a final schedule will be sent via myCHOP or myPennMedicine. While there may be minor adjustments to the order of visits, we will promptly notify you of any significant changes that could impact your travel plans.
Day Of
Important: Upon arrival to the Buerger Center, please check in at the Giant Welcome Desk and proceed to the elevators on the right. Please disregard the locations listed on the myCHOP portal and follow the locations provided in your schedule instead.
• If you are scheduled for an echo and/or EKG, take the elevator to the 12th floor. After completing your 12th-floor appointment, head down to the 9th floor for your multidisciplinary appointments.
• If you are not scheduled for imaging, take the elevator up to the 9th floor.
• If you have any add-on visits with another specialist, the location will be listed on your schedule.
When checking in on the Buerger 9th floor, please inform the front desk staff that you are checking in for all of your appointments on Buerger 9. Once you are roomed, our program coordinator will meet you there. If you need any assistance throughout the day, please let us know!
Learn more about our Clinic Information.
Other Helpful Information
- If you are a caregiver of a young child, we recommend bringing snacks and toys to keep your little one entertained during your visit.
- If you plan to have labs done, the phlebotomy lab is located on the first floor of the Buerger Center, just past the Giant Welcome Desk. It operates on a walk-in basis, so no appointment is needed. When signing in at the phlebotomy lab, please let them know you’d like to have all active lab orders completed, as orders from different providers might sometimes be missed or not automatically included.
- If you expressed interest in learning more about research opportunities at ACE-WS, our research team may approach you at some point during the day to answer any questions you might have and discuss these opportunities in more detail
After Your Visit
At the Armellino Center of Excellence for Williams Syndrome, we believe that your care extends beyond your visit. After your appointment, our team collaborates to discuss any additional referrals you may need and to ensure that your ongoing care is well coordinated. We also send an after-visit survey to gather your feedback, which is crucial for us as we strive to enhance our services and improve your experience.